Resources Guide
By S Johnson
Written to Support Residential and Community Care of Transgender People 2000 (See Library). Some contacts and locations may now be different’
The following information has been compiled and verified as correct at the time of printing. It lists the many organizations that have been approached by and have been informed as to the network of transgendered support groups and information available to them. The following organisations marked R+ have genuinely taken an interest in understand transgendered peoples’ needs. Supports Research into Residential and Community Care of Transgendered people.
Transgendered
The Beaumont Trust: BM Charity, London WC1N 3XX Trustline – 07000 287878 (7pm to 11pm Tues & Thurs)
WOBS (Women of the Beaumont Society) Offers support and advice to partners of transvestites and transsexuals.
Helplines – South: 01223 441246 & 020 8274 9243.
Central & Wales: 01684 578281; Scotland: 01389 380 389.
Essex
TransLiving, PO BOX 3, Basildon, Essex. Tel: 01268 583761.
Northern Ireland
Belfast Butterfly Club. Tel: 0585 430408 (Weds. 8pm to 10pm)
Greater Manchester
TV/TS Helpline: 0161 274 3705. (Wed & Thurs 7pm to 10pm).
Swindon
TV/TS Helpline: 01793 420262 (Friday 7pm to 11pm)
GENDYS NETWORK, BM Gendys, London WC1N 3XX.
Transsexuals, transgendered & partners
WEST MIDLANDS
Birmingham Midland Connexion.
Tel: 0121 559 3181 (Tues, Weds, Thurs 7pm to 10pm)
SCOTLAND
East – TV/TS Group c/o Edinburgh Gay Switchboard.
Tel: 0131 556 4049; West – CrossLynx TV/TS Group c/o Strathclyde Lesbian and Gay Group. Tel: 0141 332 837267 (7pm to 10pm);
North – Grampian Gender group. Tel: 01224 633108 (9am to 8pm). Crosslynx – Tel: 0141 332 333 (Mon. 7.30 to 9.30pm).
PRESS FOR CHANGE: BM Network London WC1N 3XX.
In emergencies ONLY ring: 0161-432 1915.
Campaigns for equal civil rights for transsexual and transgendered people. Also provides legal help and advice for individuals, information and training for professionals, speakers for group. Produces a newsletter and publications. Please send SAE for further details. Website: http://www.pfc.org.uk
GIRES: Gender Identity Research and Education Society: Melverley, The Warren, Ashstead, Surrey, KT21 2SP.
Tel: 01372 801554.
Exists to promote and communicate research that improves the lives of people affected by gender identity and intersex issues. Website: http://www.gires.org.uk/
MERMAIDS: BM Mermaids London WC1N 3XX. Helpline: 07020 935066 12-9pm
Support and information for children and teenagers who are trying to cope with gender identity issues and their families and carers. Please send SAE for further information.
Website: http://www.mermaids.freeuk.com/
FTM NETWORK: BM NETWORK, London WC1N 3XX.
Helpline: 0161-432 1915 (Weds 8pm to 10.30pm only)
Offers advice and support to ‘female to male’ transsexual and transgendered people, and to families and professionals. Also a ‘buddying’ scheme, newsletter. ‘Boys Own’ and an annual national meeting. www.ftm.org.uk/
AIDS
National AIDS Helpline – 0800 567123
(Willie Turnbull, Helpline Development Coordinator, R+, 18 4 2000) Terrence Higgins Trust
52-54 Gray’s Inn Road, London WC1X 8JU
Tel: Helpline 020-7242 1010 (12 noon-10pm) seven days
Fax: 020-7242 0121
Black and ethnic minorities
Chinese Information and Advice Centre, 68 Shaftsbury Avenue, London W1V 7DF
Tel:020-7692 3472 Fax: 020-7692 347 6
Confederation of Indian Organisations (UK)
5 Westminster Bridge Road, London SE1 7XW
Tel: 020-7928 9889 Fax: 020-7620 4025
Umbrella body which co-ordinates the activities of organisations serving the Indian Community.
EACH (Ethnic Alcohol Counselling in Hounslow)
65-73 Staines Road, Hounslow, Middlesex, TW3 3HW
Tel: 020-8577 6059 Fax: 020-8577 6573
Helps individuals and families, particularly Asian with alcohol and drug related problems.
Greek Advisory Service
26 Crowndale Road, London NW1 1TT
Tel/fax: 020-7388 7971
Advice for Greek and Cypriot community on family, social, legal and other welfare problems.
Jewish Care
Stuart Young House, 221 Golders Green Road London NW11 9DQ
Tel: 020-8922 2000 Fax: 020-8922 1998
UK’s largest Anglo-Jewish Charity specialising in the welfare of the Jewish Community. Provides residential/ nursing home care and has a number of specialist mental health units.
Children
Action for Sick Children
(National Association for the Welfare of children in Hospital) Argyle House, 29-31 Euston Road, NW1 2SD
Tel: 020-85424 848; fax: 020-85422 424
Offers advice and conselling for parent whose children are in hospital or receiving medical treatment at home.
Barnardo’s
Tanners Lane, Barkingside, Essex IG6 1QG
Tel: 020-8550 8822 Fax: 020-8551 6870
Provides Community-based care. Fostering and adoption, family support, residential and day care. Emphasis on helping the family as a whole.
(Martyn Webb, Information Assistant PRD Dept, 5 5 00, ‘would be delighted to be included’, and will register us on their database)
Childline
Freepost 1111
London N1 OBR
Tel: 0800 1111 (freephone)
Admin: Royal Mail Building, Studd Street, London N1 OQW
Tel: 071-239 1000; fax: 071-239 1001
National helpline, for children and young people, 24 hr counselling
(Ivonne McGohren, R+, 14 4 2000)
Please note our new address:
Contact a Family
209-211 City Road
London
EC1V 1JN
Tel: 020 7608 8700 Office
Helpline: 0808 808 3555 – free for parents and carers (10am – 4pm
Mon-Fri)
Fax: 020 7608 8701
Minicom 020 7608 8702
General e-mail: info@cafamily.org.uk
Web Site: http://www.cafamily.org.uk
Registered Charity No 284912
Company Limited by guarantee No. 1633333
Information and advice line for professionals and parents caring for children with disabilities or special needs. Locally based self-help groups for parents and national groups for specific conditions, rare syndromes and genetic conditions.
(Amanda Allard, Public Policy Officer, R+, 9 5 00)
National Society for Prevention of Cruelty to Children (NSPCC)
National Centre 42 Curtain Road London EC2A 3NH
Tel: 020-7825 2500, 0800 800 500 (24hr) Fax: 020-7825 2525
Aims to prevent child abuse of all kinds
NCH Action For Children
Central Office, 85 Highbury Park, London N5 1UD
Tel: 020-7226 2033, Fax: 020-7226 2537; Website: www.nchafc.org.uk Runs 271 projects providing community-based services for children, family mediation services.
Drugs and alcohol
Adfam
Adfam, Waterbridge House, 32-36 Loman Street, London SE1 0EH
Website: www.adfam.org.uk
Adfam is a national charity working with families affected by drugs and alcohol and is a leading agency in substance related family work. It provides a range of publications and resources for families about substances and criminal justice and operates an online message board and database of local support groups that helps families hear about and talk to people who understand their situation. Adfam also runs direct support services at London prisons for families of inmates affected by drugs. A list of publications and resources is available online at www.adfam.org.uk
Alcohol Counselling and Prevention Services
34 Electric Lane, London SW9 8JT
Tel: 020-7737 3579, Fax: 020-7737 2719
Confidential counselling service to members of Lambeth and Lewisham and Southwark who see their drinking as a problem. Choice of male/female Black, Irish, lesbian, gay counsellors
Alcoholics Anonymous (AA)
General Service Office, PO Box 1, Stonebow House, Stonebow, York YO1 2NJ. Tel: 01904 644026 Fax: 01904 629091
Families Anonymous
310 Finchley Road, London NW3 7AG
Tel: 020-7498 4680, Fax: 020-7498 1990
A fellowship of relative and friends of people involved in the abuse of mind altering substances, or with related behavioural problems, groups throughout the UK.
Turning Point
New Loom House, 101 Backchurch Lane, London E1 1LU
Tel: 020-7702 2300, Fax: 020-7702 1456
The largest national voluntary organisation helping those with drink, drugs and mental health problems.
Learning difficulties
Action for Dysphasic Adults
1 Royal Street, London SE1 7LL
Tel: 020-7261 9572; fax: 020-7928 9542
Advice and support for people with communication problems following a stroke, head injury or other neurological cause. Network of local groups.
AFASIC overcoming speech impairments
347 Central Markets, London EC1A 9NH Tel: 020-7841 8900; fax: 020-7841 8901
Represents children and young people with speech and language impairments. AFASIC organises activity weeks for children and young people.
Autistic Society, the National
393 City Road, London EC1V 1NE
Tel: 020-7833 2299; fax: 020-7833 9666
Provides advice, support and information to carers.
Dyslexia Association, British
98 London Road, Reading, Berkshire RG1 5AU
Tel: 01734 662677; National Helpline: 0118 966 8271;
fax: 0118 935 1927; e-mail:info@dyslexiahelp-bda.demon.co.uk
Support and information
Learning Disabilities, British Institute of
Information and Resource Centre, Wolverhampton Road, Kidderminster, Worcestershire DY10 3PP
Tel: 01562 850251; fax: 01562 851970
Provides information, in-house training courses, and publications.
Mentally Handicapped Children and Adults, Royal Society for (MENCAP) 123 Golden Lane, London EC1Y ORT.
Tel: 020-7454 0454; fax: 020-7608 3254
National organisation offering support and practical help to people with learning disabilities and their families.
Mental health
(Pat Freya, Hon. Secretary, R+, 19 4 2000)
Depressives Anonymous (fellowship of)
36 Chestnut Avenue, Beverley, East Yorks HU17 9QU
Tel: 01702 433838; fax: 01702 433843;
Supports people suffering from depression, promotes formation of local groups
(Steve Bloomfield, Media and Information Manager
Direct line: 01603 624310, R+, 14 4 2000)
Eating Disorders Association
First Floor, Wensum House, 103 Prince of Wales Road, Norwich NR1 1DW Tel: 01603 619090; fax: 01603 664915; e-mail: info@edauk.com Helpline: 01603 621414 (weekdays, 9.00am – 6.30pm)
Youthline: 01603 765050 (up to 18 rears of age. Weekdays, 4 – 6 pm) Recorded Information Service: 0906 3020012; Website: www.edauk.com For help with anorexia and bulimia nervosa. UK-wide Network of local self-help and support groups, postal and telephone contacts.
Mental After Care Association
25 Bedford Square, London WC1B 3HP
Tel: 020-7436 6194; fax: 020-7637 1980
Provides a wide range of community-based services for adults with mental health needs and their carers.
(George Stewart, Information Officer, R+, Have Written Their Own Booklet on Gender Dysphoria – well informed! V Positive, 20 4 2000)
MIND (National Association for Mental Health)
Granta House, 15-19 Broadway, Stratford, London E15 4BQ
Tel: 020-8519 2122; fax: 020-8522 1725;
MindInfoline (London): 020-8522 1728; (Outside London): 08457 660 163 Offers support for people in mental distress, and their families. Maintains a network of local groups and organises conferences and training. Have developed a booklet on Understanding Gender Dysphoria.
Psychiatric Rehabilitation Association
The Groupwork Centre
Bayford Mews, Bayford Street, London E8 3SF
Tel: 020-8985 3570; fax: 020-8986 1334
Referrals from hospital by medical or social work staff and encourages people to play an active part in the community.
Richmond Fellowship
8 Addison Road, Kensington, London W14 8DJ
Tel: 020-7603 6373; fax: 020-7602 8652
Provides a range of housing and care for people with mental health and addiction problems. Vocational rehabilitation, training and work experience. Training and Consultancy Services for mental health professionals.
(R+, Gary Hogman, Head of Policy & Campaigns, 12.4.00)
Schizophrenia Fellowship, National 28 Castle Street, Kingston-upon-Thames, Surrey KT1 1SS.
Tel: 020-8547 3937; fax: 020-8547 3862;
Advice Service: 0181-974 6814 (Monday-Friday, 10 a.m.-3 p.m.) e-mail: nsf@nsf.org.uk
Voluntary organisation providing support for people with severe mental illness, their families and carers. Provides support for over 9,000 people a week in England, Wales and N. Ireland through 280 Community Care projects.
Older people
Abbeyfield Society (NR)
Abbeyfield House, 53 Victoria Street, St Albans,
Hertfordshire AL1 3UW
Tel: 01727 857536; fax: 01727 846168;
e-mail: abbeyf@gee2.poptel.org.uk
A network of local volunteer-led societies providing housing with support for older people. Sheltered and registered residential homes.
Age Concern England
Astral House, 1268 London Road, London SW16 4ER
Tel: 020-8679 8000; fax: 020-8679 6069
The National Council on Ageing, brings together 100 national organisations in the UK. Over 250,000 volunteers.
Ageing, Centre for Policy on
25-31 Ironmonger’s Row, London EC1V 3QP
Tel: 020-7253 1787; fax: 020-7490 4206
Analyses policy towards older people and promotes good practice
(Rebecca Gray, Head of Public Affairs, R+, 7 1 2000)
Alzheimer’s Disease Society
Gordon House, 10 Greencoat place, London, SW1P 1PH
Tel: 020-7306 0606
Referred to: D.Sheard (Dementia Care Consultancy) Care Matters – 07020 987000
BUPA Care Homes and Care Services
Freepost LS1722, Leeds LS18 4YY
Part of the UK’s leading independent health care organisation, with over 200 care homes in the UK.
Contact the Elderly
15 Henrietta Street, London WC2E 8QH
Tel: 0800 099 099; Website: www.contact-the-elderly.org
Elizabeth Finn Trust (previously DGAA Homelife)
1 Derry Street, London W8 5HY
Tel: 020-7369 6700; fax: 020-7396 6739
Aims to enable people of British and Irish nationality (professional or similar background to stay in their own homes. Runs 13 residential and nursing homes.
Friends of the Elderly (and Gentlefolks Help)
42 Ebury Street, London SW1 OLZ
Tel: 020-7730 8263; fax: 020-7259 0154
Runs 12 residential nursing homes; can offer financial help for the elderly in cases of need.
Help the Aged
St James’s Walk, Clerkenwell Green, London EC1R OBE
Tel: 020-7253 0253; fax: 020-7251 0747
Senior Line: 0800 650065 (call free Mon-Fri, 10 a.m. to 4 p.m.) Works to improve the quality of life for older people in the UK and internationally.
Income Guarantee Helpline (Pensioners)
Freephone: 0800 028 1111
Government Benefits helpline for older people to assist and encourage them to claim their entitlements.
Methodist Homes for the Aged
Epworth House, Stuart Street, Derby DE1 2EQ
Tel: 01332 296200; fax: 01332 296925
Cares for over 2000 people in 37 residential homes, two specialist homes for people with dementia. Manages 28 sheltered housing schemes.
Pre-retirement Assoc of GB & Northern Ireland (NR)
26 Frederick Sanger Road, Surrey Research Park, Guilford,
Surrey GU2 5YD
Tel: 01483 301170; fax: 01483 300981
Provides guidance on retirement planning, employment concerns, finance, housing, health and leisure.
Illness and disablement
Action for Victims of Medical Accidents
Bank Chambers, 1 London Road, Forest Hill, London SE23 3TP
Tel: 020-8686 8333
Advises patients who feel something has gone wrong with their treatment. Advises solicitors if legal action is possible.
Arachnoiditis Trust
PO Box 27, Stoneycroft, Liverpool L13 5RS
Tel/fax: 0151 259 0222
Information and support via helpline and newsletter for people with inflammation of the spinal cord.
Arthritis Care
(Judith Smart, Information Manager,R+, Would like to develop policy
and looks forward to obtaining a copy of booklet when published 15 4 2000)
18 Stephenson Way, London NW1 2HD
Tel: 020-7380 6500; fax: 020-7380 6505
Freephone helpline: 080 8800 4050 (Mon-Fri, 12 noon-4 p.m.)
Works with and for people with arthritis to promote their well-being. Campaigns for greater awareness of the needs of people with arthritis. Produces a range of publications
Arthritis, Horder Centre for
St. Johns Road, Crowborough, East Sussex TN6 1XP
Tel: 01892 665577; fax: 01892 662142
Rehabilitation, long/short term nursing and orthopaedic surgery for joint replacement. Osteoporosis screening. Sports injuries.
ASPIRE (Association for Spinal Injury Research, Rehabilitation and Reintegration)
Royal National Orthopaedic Hospital, Brockley Hill, Stanmore, Middlesex HA7 4LP
Tel: 020-8954 0701; fax: 020-8420 6352
Supports people with spinal cord injury.
BackCare, the Charity for Healthier Backs
16 Elmtree Road, Teddington, Middlesex TW11 8ST Tel: 020-8977 5474; fax: 020-8943 5318; mailbox:
101540. info@backcare.org.uk; website: www.backcare.org.uk Information and network of branches nationwide.
(Judith Brodie, Head of Cancer Support Services, 4 5 00, no specific policy but does have an equal opportunities policy for staff & clients, R+)
CancerBACUP (British Association of Cancer United Patients)
3 Bath Place, Rivington Street, London EC2A 3DR
Tel: 020-7696 9003; fax: 020-7696 9002;
Cancer information service: 020-7613 2121; Freephone: 0808 800 1234; Cancer counselling service, London: 020-7696 9000, Glasgow: 0141-553 1553; Website: www.cancerbacup.org.uk
Provides information and counselling to people with cancer and their families. Has an equal opportunities policy to ensure that no job applicant, paid or unpaid worker or service user is discriminated against or treated less favourably.
Bobath Centre for Adults with Neurological Disability
Bradbury House, 250 East End Road, London N2 8AU
Tel: 020-8444 3355; fax: 020-8444 3399
Individual treatment based on the Bobath approach, for adults with acquired neurological conditions caused for example by strokes or head injuries.
Brain Injury Rehabilitation Centre, Banstead Place
Park Road, Banstead, Surrey SM7 3EE
Tel: 01737 356222; fax: 01737 359467;
e-mail: bansteadplace@wmin.ac.uk
Medical rehabilitation for people from 16-35.
Break
20 Hooks Hill Road, Sheringham, Norfolk NR26 8NL
Tel: 01263 823170; fax: 01263 825560
Holiday/short day care for children/adults and families with special needs. Also childcare/daycare and leaving care assessments.
(Bernie Gardiner, pleased for us to use details and be involved R+, 26 4 2000).
Breast Cancer Care
Kiln House, 210 New Kings Road, London SW6 4NZ Tel: 020-7384 2984 (admin); helpline: 0808 800 6000
fax: 020-7384 3387; e-mail: bcc@breastcancercare.org.uk Website: www.breastcancercare.org.uk
Medical advice and nursing care, breast prosthesis fitting service.
(Jackie Kerr, Development officer, R+, 14 4 2000)
Brittle Bone Society
30 Guthrie Street, Dundee DD1 5BS
Tel: 01382 204446; fax: 01382 206771; e-mail: bbs@brittlebone.org Freephone Helpline: 08000 28 24 59; Website: www.brittlebone.org Advice, encouragement and practical help for the treatment of osteogenesis imperfecta.
Cancer Help Bristol
Grove House, Cornwallis Grove, Clifton, Bristol BS8 4PG
Tel: 0117 980 9505; fax: 0117 923 9184
An international organisation providing holistic programmes based on healing, plans for healthy eating, counselling etc. Cancer Information Centre, Tenovus
College Buildings, Courtenay Road, Splott, Cardiff CF1 1SA
Tel: 02920 497700; fax: 02920 489919
Freephone helpline: 0800 526527
Provides information, support and counselling. Supports services by trained carer nurses in outpatients’ departments.
Cancerlink
11-21 Northdown Street, London N1 9BN
Freephone Helpline: 0800 132905; Asian Helpline in Hindi, Punjabi and Urdu and English: 0800 590415; Freephone MAC Helpline for young People affected by cancer: 0800 591028
Information Service
Cancerlink Self Help and Support Service
(Address as above)
Tel: 020-7833 2818; fax: 020-7833 4963
Networking facility for group members, support and training.
Cancer Relief, Macmillan
15-19 Britten Street, London SW3 3TZ
Tel: 020-7351 7811; fax: 020-7376 8098
Support, advice, help. Purpose built short-stay homes and home based support services and financial help.
Changing Faces
1-2 Junction Mews, Paddington, London
Tel: 020-7706 4232; fax: 020-7706 4234
Support network to help people affected by facial disfigurements
Crossroads Care Attendant Schemes Ltd, Association of
10 Regent Place, Rugby, Warwickshire CV21 2PN
Tel: 01788 573653; fax 01788 565498
Provides respite care to carers, through a network of care attendant schemes nationwide.
Diabetic Association, British
10 Queen Anne Street, London W1M OBD
Tel: 020-7323 1531; fax: 020-7637 3644
Offers help and support to diabetics and their families.
Disabled Access to Technology Association (DATA) Broomfield House, Bolling Road, Bradford BD1 7BG Tel: 01274 370019 (also minicom); fax 01274 723861 e-mail: DATA@dial.pipex.com
Information technology training for adults with a physical, sensory or hidden disability.
(Sian Mcclure, dlcc Project Worker, Will contact all the teams with information and process feedback on policy direction, delighted to be included, responded by phone, 12 5 00)
Disabled Living Centres Council (dlcc)
Redbank House, 4 St.Chad’s Street, Manchester M8 8QA
Tel: 0161 834 1044 (minicom use announcer); fax: 0161 835 3591. e-mail: dlcc@dlcc.demon.co.uk; Website: http://www.dlcc.demon.co.uk Offers information and solutions to practical difficulties to disabled people, carers and their families. Over 42 centres throughout the UK. Advice provided on: benefits, education, employment,
housing, legislation, leisure, transport and mobility.
Disabled People, John Grooms Association for
50 Scrutton Street, London EC2A 4PH
Tel: 020-7452 2121 (Monday-Thursday, 9.15 a.m.-5.15 p.m. and Friday, 9.15 a.m.- 4 p.m.); fax: 020-7452 2001
Specialist residential care, training, employment with a variety of wheelchair friendly holiday accommodation in the UK and abroad.
Disabilities Trust
First Floor, Market Place, Burgess Hill, West Sussex RH15 9NP
Tel: 01444 239123; fax: 01444 244978
Offers permanent residential support for adults with physical disabilities or autism, rehabilitation for brain injured clients. Outreach service when needed.
Disfigurement Guidance Centre
PO Box 7, Cupar, Fife KY15 4PF
Tel: 01334 839084; fax: 01334 839105
Counselling, support and information for people of all ages who have been disfigured.
Enuresis Resource and Information Centre
34 Old School House, Britannia Road, Kingswood, Bristol BS15 2DB Tel: 0117 960 3060; fax: 0117 960 0401
Advice and information to children, parents and professionals on nocturnal enuresis or bed wetting and day-time wetting.
Epilepsy Association is now Epilepsy Action. (British)
Freephone Helpline: 0808 800 5050
Website: http://www.epilepsy.org.uk
Address: New Anstey House, Gate Way Drive, Yeadon, LEEDS, LS19 7NW
Main Office phone: 0113 210 8800
Fax: 0113 391 0300
Provides advice, information and counselling.
Haemophilia Society
Chesterfield House, 385 Euston Road, London NW1 3AU Tel: 020-7380 0600; fax: 020-7387 8220
e-mail: info@haemophilia-soc.demon.co.uk
National network of Local groups, advice and information. Financial assistance grants. Arranges holidays for young people.
Hairline International
Lyons Court, 1668 High Street, Knowle, West Midlands B93 OLY
Tel: 01564 775281; fax: 01564 782270
Self-help support network for alopecia patients, including alopecia areata and alopecia androgenetica. Offers information, advice and financial help with wigs.
Headway, National Head Injuries Association Ltd
7 King Edward Court, King Edward Street, Nottingham NG1 1EW
Tel: 0115 924 0800; fax: 0115 958 4446
Promotes understanding of all aspects of head injuries. Support, services and information.
Hospice Information Service
St Christopher’ Hospice, 51-59 Lawrie Park Road, London SE26 6DZ Tel: 020-8778 9252; fax: 020-8776 9345
A worldwide network of resources. Information on hospice planning.
Kidney Federation, National
6 Stanley Street, Worksop S81 7HX
Tel: 01909 487795; fax: 01909 481723
Run by kidney patients. Supports kidney patients and their families.
Leonard Cheshire
30 Millbank
London
SW1P 4QD
Tel: 020 7802 8200
Fax: 020 7802 8250
Email: info@london.leonard-cheshire.org.uk
Provides a range of support services for people with physical and learning disabilities, and support for carers, both in the UK and throughout the world. Services include: residential accommodation, home support, independent and semi-independent housing, respite and rehabilitation programmes.
Leukaemia Care Society
14 Kingfisher Court, Venny Bridge, Pinhoe, Exeter, Devon EX4 8JN Tel: 01392 464848; fax: 01905 330090
Financial and holiday support for sufferers and their families.
Marie Curie Cancer Care
28 Belgrave Square, London SW1X 8QG
Tel: 020-7235 3325; fax: 020-7823 2380
Provides nursing care in people’s own homes or in hospice centres
Motor Neurone Disease Association PO Box 246, Northampton NN1 2PR
Tel: 01604 250505; fax: 01604 624726 Helpline:(lo-call) 0345 626262
Offers support, information and advice for people with MND. Equipment loan and financial assistance.
(Information Services Team, R+, 22 4 2000)
Multiple Sclerosis Society of Great Britain and Northern Ireland, The 25 Effie Road, Fulham, London SW6 1EE
Tel: 020-7610 7171; fax: 020-7736 9861; e-mail: info@mssociety.org.uk Freephone Helpline: 0808 800 8000; website: www.info@mssociety.org.uk Welfare and support services to sufferers and their families, branches nationwide, publications available.
Muscular Dystrophy Group of Great Britain and Northern Ireland 7-11 Prescott Place, London SW4 6BS
Tel: 020-7720 8055; fax 020-7498 0670; website: http//www.sonet.co.uk/rupert/index.htm
Supports adults and children suffering from this and other muscle wasting diseases. Counselling, information and equipment grants available.
ME Association (Myalgic Encephalomyelitis)
Stanhope House, High Street, Stanford Le Hope, Essex SS17 OHA Tel: 01375 642466; fax: 01375 360256
Provides information and support nationwide.
Opportunities for People with Disabilities
1 Bank Buildings, Princes Street, London EC2R 8EU
Tel/fax: 020-7481 2727; minicom: 020-7726 4963
National network of regional centres. Employment and training advice
Parkinson’s Disease Society of the UK
22 Upper Woburn Place, London WC1H ORA
Tel: 020-7931 8080; fax: 020-7233 9908
Information and advice from head office and local branches
PHAB Limited (Physically Disabled and Able Bodied)
Summit House, Wandle Road, Croydon CRO 1DF
Tel: 020-8667 9443; fax: 020-8681 1399
Clubs and holidays to bring disabled and able-bodied people together.
Polio Fellowship, British
Unit A, Eagle Office Centre, The Runway, South Ruislip, Middlesex HA4 6SE. Tel: 020-8842 4999; fax: 020-8842 0555. Supports people who have a disability caused through polio. Network of branches nationwide. Provides advice and financial support if approaches to statutory agencies have been unsuccessful.
Queen Elizabeth’s Foundation for Disabled People.
Leatherhead Court, Leatherhead, Surrey KT22 OBN Tel: 01372 842204; fax: 01372 844072
Umbrella organisation for Mobility Centre, Banstead and Brain Injury Rehabilitation Centre, Banstead Place – see separate entries.
SCOPE (formerly The Spastics Society)
6-10 Market Road, London N7 OPW Tel: 0800 626216; fax: 01908 321051
Services include: schools, residential care, advice, information and support and related disabilities for people with cerebral palsy and related disabilities. Network of local teams and field workers.
Sickle Cell Society
54 Station Road, London NW10 4UA
Tel: 020-8961 7795; fax: 020-8961 8346
Information, financial and welfare support.
(Nicola Vandersteen, Development Coordinator, R+, 20 4 2000)
SPOD (The Association to Aid the Sexual and Personal Relationships of People with a Disability)
286 Camden Road, London N7 OBJ
Tel: 020-7607 8851; fax: 020-7700 0236
Provides literature, counselling and literature.
Stroke Association, The
Stroke House, 123-127 Whitecross Street, London EC1Y 8JJ
Tel: 020-7490 7999; fax: 020-7490 2686
Information, advice and direct house to stroke sufferers.
Urostomy Association
Central Office, 18 Foxglove Avenue, Uttoxeter, Staffordshire, ST14 8UN
Tel 0870 7707931
Fax 0870 7707932
Email info.ua@classmail.co.uk
Website www.uagbi.org
The Urostomy Association of Great Britain and Ireland, is a registered charity (270600) and was formed to assist people who are about to undergo, or who have undergone surgery resulting in a urinary diversion of any kind. Eg Urostomy, Mitrofanoff, Orthoptic bladder and supra-pubic catheter. Formed in 1971, UA has local branches around the UK and Ireland. Full and associate membership is available, for a small annual subscription. Members receive “The UA Journal”, 3 times a year, which includes articles, letters, and information on appliances and their supply.Various other information leaflets, videos and advice are available.
Vitiligo Society
19 Fitzroy Square, London W1P 5HQ
Tel: 020-7388 8905; fax: 020-7388 0487
Information and advice about this condition.
Winged Fellowship Trust
Angel House, 20-32 Pentonville Road, London N1 9XD
Tel: 020-7833 4579; fax: 020-7278 0370
Holidays and respite care for physically disabled people both in purpose built centres in the UK and abroad. Special weeks for people with Alzheimer’s disease, and other dementias, and their carers.
Women with visible and invisible disabilities
Crossroads Women’s Centre, 230a Kentish Town Road, London NW5 2AB Tel: 020-7482 2496 (voice or minicom); fax: 020-7209 4761; mail to: PO Box 287, London NW6 5QU; centre open Tues and Weds, 12-4 p.m. Thurs 5-7 p.m.
Multi-racial network of women with visible and invisible disabilities (such as epilepsy) Support and information.
Sensory disabilities
Blind People, Action for
14-16 Verney Road, London SE16 3DZ
Tel: 020-7732 8771; fax: 020-7639 0948
Information and advice service for blind and partially sighted people. Holidays, residential homes, nursing homes, sheltered accommodation and independent flats.
Blind, Royal National Institute for the (RNIB)
224 Great Portland Street, London W1N 6AA
Tel: 020-7388 1266; fax: 020-7388 2034
Advice and support on all issues that affect blind and partially sighted people. Campaign for rights and an improved quality of life.
Deaf People, Royal National Institute for
19-23 Featherstone Street, London EC1Y 8SL
Tel: 020-7296 8000 (voice), 020-7296 8001 (text); fax: 020-7296 8199 Offers support, advice and residential services. Information and training.
General
Anchor Housing
Anchor Trust, Fountain Court, Oxford Spires Business Park, Kidlington, Oxford OX5 1NZ
Tel: 01865 854000; fax: 01865 854003
Provides sheltered housing with care for the elderly.
(Jill Harrison, Advice Manager, R+, 19 4 2000)
Carers’ National Association
20-25 Glasshouse Yard, London EC1A 4JT
Tel: 020-7490 8818; fax: 020-7490 8824,
Carers’ Line: 0808 808 7777; Minicom: 020-7251 8969
Provides Support and information for people caring for relatives and friends at home. Encourages carers to recognise their own needs and develop appropriate support.
Church Army
Church Army Headquaters, Independence Road, Blackheath, London SE3 9LG. Tel: 020-8318 1226; fax: 020-8318 5258 Trains evangelistic officers in social, drug abuse, homeless matters, outreach work. Provides hostels.
Citizen’s Advice Bureaux, National Association of
Myddleton House, 115-123 Pentonville Road, London N1 9LZ
Tel: 020-7833 2181; fax: 020-7833 4371.
Free impartial confidential advice through local network of bureaux
Community Service Volunteers
237 Pentonville Road, London N1 9NJ
Tel: 020-7278 6601; fax: 020-7837 9621
Consumer Council, National
20 Grosvenor Gardens, London SW1W ODH Tel: 020-7730 3469; fax: 020-7730 0191
Represents the users of goods and services of all kinds
Cruse Bereavement Care
126 Sheen Road, Richmond, Surrey TW9 1UR
Tel: 020-8940 4818; fax: 020-8940 7638; bereavement line:020-8332 7227 UK charity offering free bereavement counselling at over 200 branches
Family Holiday Association
16 Mortimer Street, London W1N 7RD
Tel: 020-7436 3304; fax: 020-7436 3302
Helps deprived families in need of a holiday. One weeks holiday funded referrals from health authorities, probation services, social services or other statutory organisations.
Family Welfare Association
501-505 Kingsland Road, Dalston, London E8 4AU
Tel: 020-7254 6251; fax: 020-7249 54443
Provides counselling and runs projects for people with social or
emotional problems. Services for disabled people and their families.
Gamblers Anonymous
24-hour phone line – London: 020-7384 3040
Gingerbread
16-17 Clerkenwell Close, London EC1R OAA
Tel: 020-7336 8183; fax: 020-7336 8185
National network of self-help groups for one-parent families. Provides advice, information and support.
Home From Hospital
20 Westfield Road, Edgbaston, Birmingham B15 3QG
Tel: 0121-454 7894; fax: 0121-454 8331
Campaigns for improvement in hospital discharge planning, social and after-care once discharged. Provides a voluntary welcome home service in Birmingham and Salisbury areas.
Lesbian and Gay Bereavement Project
Vaughan Williams Centre, Colindale Hospital, London NW9 5HG Helpline: 020-8455 8894 (eves 7-12pm); fax: 020-8200 0345. Help advice and support to those who have suffered a bereavement
National Benevolent Institution
61 Bayswater Road, London W2 3PG
Tel: 020-7723 0021; fax: 020-7706 7035
Provides financial assistance to the elderly in need.
NHS Direct
0845 4647
Helpline providing advice and guidance on NHS services and to those concerned about their health.
One Parent Families, National Council for
255 Kentish Town Road, London NW5 2LX
Tel: 0800 0185; fax: 020-7482 4851
Provides a comprehensive information service for one-parent families.
PPP Health Care
Phillips House, Crescent Road, Tunbridge Wells, Kent TN1 2PL Independent health care provision throughout the UK.
Red Cross Society, British
9 Grosvenor Crescent, London SW1X 7EJ
Tel: 020-7235 5454; fax: 020-7245 6315
Impartial care to people in crises, in their homes, community, nationally and internationally in peaces and war.
Relate (formerly National Marriage Guidance Council)
Herbert Gray College, Little Church Street, Rugby, Warwickshire CV21 3AP. Tel: 01788 573241; fax: 01788 535007
Counselling and psych-sexual therapy for individuals or couples experiencing relationship difficulties.
Salvation Army Social Services
101 Newington Causeway, London SE1 6BN
Tel: 020-7367 4879; fax: 020-7367 4712
International religious and social welfare movement, provides basic needs and counselling.
Samaritans, The
10 The Grove, Slough, Berks SL1 1QP
Tel: 01753 532713; fax: 01753 819004 (admin numbers only)
Helpline: Lo-call 0845 790 90 90 (local branches in the Phone Book) Website: www.samaritans.org.uk
Network of 24-hour befriending to those in crisis.
Shelter (The National Campaign for Homeless People)
88 Old Street, London EC1V 9HU
Tel: 020-7505; fax: 020-7505 2169; e-mail: 100656,1504@compuserve.com; Website: http://www.vois.org.uk/shelter
Campaigns on behalf of the homeless or badly housed people. Housing Aid Centres Nationwide.
Social Workers, British Association of (BASW)
16 Kent Street Birmingham B5 6RD
Tel: 0121-622 3911; fax: 0121-622 4860; e-mail: BASW@basw.demon.co.uk Professional association, campaigns and defends the ethics of social work. Provides confidential support and advice.
Voluntary Organisations, National Council for
Regents Wharf, 8411 Saints Street, London N1 9RL
Tel: 020-7713 6161; fax: 020-7713 6300
Can supply information about national voluntary organisations.
Women, Rights of
52-54 Featherstone Street, London EC1Y 8RT
Tel: 020-7251 6577; fax: 020-7608 0928
Free legal advice. Ansaphone when advice line not open.
Women’s Aid Federation, England
PO Box 391, Bristol BS99 7WS
Tel: 0117 944 411; fax: 0117 924 1703; Helpline: 0345 023 468
Key UK agency for women and children suffering domestic violence.
Women’s Health Concern Ltd. (WHC)
93-99 Upper Richmond Road, London SW15 2TG
Tel: 020-8780 3916; fax: 020-8780 3945; Helpline: 020-8780 3007. Provides information, advice and counselling on hormonal and gynaecological conditions. PGEA approved. Post-graduate nurses courses
Women’s Nationwide Cancer Control Campaign (WNCCC)
Suna House, 128-130 Curtain Road, London EC2A 3AR
Tel: 020-7729 1735; fax: 020-7613 0771; Helpline: 020-7729 2229. e-mail: wnccc@dial.pipex.com;
Website: http://dspace.dial.pipex.com/town/square/gm40/
Educates women on breast and cervical cancer screening. Provides education and emotional support.
Women’s Royal Voluntary Service (WRVS)
Milton Hill House, Milton Hill, Abingdon, Oxon OX13 6AF
Tel: 01235 442900; fax: 01235 861166
Network of Providers who specialise in voluntary assistance to those in need of care in their local community.
Welfare Benefits and Pensions
Age Concern England (See Older People)
Independent Tribunals Service Office of the President of Social Security, Medical, Disability and Vaccine Damage Appeals Tribunals The President’s Office, 4th Floor, Whittington House, 19-30 Alfred Place, London WC1E 7LW.
Tel: 020-7814 6500; fax: 020-7814 6540.
Tribunal assistance for England, Scotland and Wales.
Low Pay Unit
27-29 Amwell Street, London EC1R 1UN
Tel: 0207-713 7616
Independent organisation, campaigning and advice on low pay.
National Debtline
Tel: 0121-350 8501
Adviceline for those with debt problems – mortgage, council tax etc.
Occupational Pensions Advisory Service
11 Belgrave Road, London SW1V 1RB
Tel: 020-7233 8080
Voluntary organisations offers advice for those experiencing difficulties with occupational pensions.
Occupational Pensions Regulatory Authority (OPRA)
Invicta House, Trafalgar Place, Brighton, E.Sussex BN1 4BU. Tel: 01273 627600
Pensions Ombudsman
11 Belgrave Road, London SW1 1RB
Tel: 020-7834 9144
Social Security Freeline
0800 666555 (in England, Scotland and Wales)
0800 616757 (in Northern Ireland)
0800 289188 (advice in Urdu)
0800 5231360 (advice in Punjabi) 0800 289011 (advice in welsh) 0800 252451 (advice in Chinese)
0800 0281111 (advice and encouragement for older people to claim their entitlements).
NORTHERN IRELAND
Learning Difficulties
Mencap in Northern Ireland
4 Annadale Avenue, Belfast BT7 3JH Tel: 02890 691351; fax: 02890 640121
Drugs and alcohol
Northern Ireland Community Addiction Service 40 Elmwood Avenue, Belfast BT9 6AZ
Tel: 02890 664434; fax: 02890 664090
Mental Health
Mental Health, Northern Ireland Association for
80 University Street, Belfast BT7 1HE
Tel: 02890 328474; fax: 02890 435916
Mental Health Information Service
South Belfast Beacon Centre, 84 University Street, Belfast BT7 1HE Tel/fax: 02890 237937 (Mon-Fri 2-4 pm; Tues 6-8 pm)
Older People
Extracare for Elderly People
11 Wellington Park, Belfast BT9 6DJ
Tel: 02890 683273; fax: 02890 669056
Provides domiciliary respite for carers of older people. Assessment through social services or health care Staff.
Illness and disablement
Chest, Heart and Stroke Association, Northern Ireland
21 Dublin Road, Belfast BT2 7HB
Tel: 02890 320184; fax: 02890 333487
Disability Action
2 Annadale Avenue, Belfast BT7 3JH Tel: 02890 491011; fax: 02890 491627
170 groups covering every aspect of disability. Campaigns for the needs of disabled people. Offers a range of services to enable people to make informed choices about issues that effect their lives
ME Association, The (Myalgic Encephalomyelitis), Northern Ireland Regional Office, Bryson House, 28 Bedford Street, Belfast BT2 7FE Tel/fax: 02890 439831
Supports sufferers, raises funds for research.
NICOD
Malcom Sinclair House, 31 Ulstervilla Avenue, Belfast BT9 7AS
Tel: 02890 666188; fax: 02890 682400
Offers training for education and employment to enable people with physical disabilities to live as independently as possible. Offers support to enable people with physical disabilities to remain in the community. Supports carers.
Sensory disabilities
Blind, Royal National Institute for the
40 Linenhall Street, Belfast BT2 8BG
Tel: 02890 329373; fax: 02890 439118
General
(Helen Ferguson, Director, R+, 16 5 00)
Carers’ National Association, Northern Ireland
Regional Office, 113 University Street, Belfast BT7 1HP
Tel: 02890 439843; fax: 02890 329299
Crossroads Care Attendant Scheme, Northern Ireland
Divisional Office, 7 Regent Street, Newtownards, Belfast BT23 4AB
Tel: 02891 814455; fax: 02891 812112. Provides respite to carers through a network of care attendant schemes.
Habinteg Housing Association (Ulster) Ltd
Alex Moira House, 22 Hibernia Street, Hollywood, Co Down BT18 9JE Tel: 02890 427211; fax: 02890 428069
Integrated housing for people with and without disabilities
SCOTLAND
Drugs and alcohol
Alcohol, Scottish Council on
Second Floor, 166 Buchanan Street, Glasgow G1 2NH
Tel: 0141-333 9677; fax: 0141-333 1606
Information and advice on alcohol issues. Network of 28 agencies.
Mental Health
Mental Health, Scottish Association for
Atlantic House; 38 Gardener’s Crescent, Edinburgh EH3 8DQ
Tel: 0131-229 9687; fax: 0131-229 3558
Older people
Age Concern Scotland
113 Rose Street, Edinburgh EH2 3DT
Tel: 0131-220 3345; fax: 0131-220 2779
Illness and disablement
Chest, Heart and Stroke Association
65 North Castle Street, Edinburgh EH2 3LT
Tel: 0131-225 6963; fax: 0131-220 6313
Advice from trained nurses for people who have chest, heart and stroke conditions, their families, carers and health professionals
Disability Scotland
5 Shandwick Place, Edinburgh EH2 4RG
Tel: 0131-229 8632; fax: 0131-229 5168 Information on all aspects of disability
(John Carchadald, 12 4 2000, R+) Epilepsy Association of Scotland (R+) National Headquaters
48 Govan Road, Glasgow G51 1JL
Tel: 0141-427 4911; fax: 0141-427 7414
LEAD – Scotland (Linking Education and Disability)
Queen Margaret College, Clerwood Terrace, Edinburgh EH12 8TS Tel: 0131-317 3439; fax: 0131-339 7198
Education, information and tuition for adults with physical and/ or sensory disabilities.
Spinal Injuries Scotland
Festival Business Centre, 150 Brand Street, Glasgow G51 1DH Tel/fax: 0141-314 0056; Helpline: 0141-314 0082
General
Accessible Information Forum, Scottish
Royal Exchange House, 100 Queen Street, Glasgow G1 3DN
Tel: 0141-226 5261; fax: 0141-221 0731
Carers Forum, Strathclyde
11 Queens Crescent, Glasgow G4 9AS
Tel: 0141-353 2726; fax: 0141-353 2717
Consumer Council, Scottish
Royal Exchange House, 100 Queen Street, Glasgow G1 3DN
Tel: 0141-226 5261; fax: 0141-221 0731
Crossroads (Scotland)
Care Attendant Schemes, 24 George Square, Glasgow G2 1EG Tel: 0141-226 3793; fax: 0141- 221 7130
Red Cross Society, British
Scottish Branch, 204 Bath Street, Glasgow G2 4HL
Tel: 0141-332 9591; fax: 0141-332 8493
WALES
Disability Wales/Anabled Cymru
Llys Ifor, Crescent Road, Caerphilly, Mid Glamorgan CF83 1XL Tel/minicom: 02920 887325; fax: 02920 888702
Sensory disabilities
Wales Council for the Blind
Shand House, 20 Newport Road, Cardiff CF2 1YB
Tel: 02920 473954; fax: 02920 433920
Wales Council for the Deaf
Glenview House, Courthouse Street, Pontypridd CF37 1JY
Tel: 01443 485687 (voice); 01443 485686 (text); fax: 01443 408 555
General
Shelter Cymru
25 Walter Road, Swansea SA1 5NN
North Wales Office
Tel: 01792 469400; fax: 01792 460050
23 Abbott Street, Wrexham LL11 1TA
Tel: 01978 353649; fax: 01978 361577
Request for inclusion in The Open University resources guide – R+ On implementing their new course ‘Care, Welfare and Community’.